Faculty of Public Health - Andalas University - OCS, 13th IEA SEA Meeting and ICPH - SDev

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Palliative Care from Patient’s and Family’s Perspective
Nita - Arisanti, Elsa Pudji Setiawati, Veranita Pandia, Dany Hilmanto

Last modified: 2018-08-09


Background: Palliative care became the agenda of the Indonesian government in 2007 with the issuance of Decree on Palliative Care Policy. The access of patients with terminal illness is the patients' rights. However, the implementation is still very limited to certain hospitals. The purpose of this study was to explore the implementation of palliative care from perspective of patients and family.


Material and Methods: A qualitative study was conducted using in-depth interviews. An interpretative qualitative study with content analysis was used. Data was analyzed by transcription and coding using NVivo 11. It was conducted from March to June 2018.


Results: In-depth interviews were conducted to 14 patients in primary health care and hospital. The themes describing patients’ and family’s perspective are (1) health problem oriented consist of symptom management, communication, follow up, coordination; (2) socio-cultural-spiritual support such as family understanding, acceptance and coping; (3) accessibility of care such as financial support, feasibility of health care facilities. 


Conclusion: From patients’ and family’s perspective, there are some aspect should be considered in implementing palliative care. 


Acknowledgements: The author would like to thank to Indonesia Endowment Fund for Education (Lembaga Pengelola Dana Pendidikan RI) for supporting this study. 


Keywords:family, palliative care, patient, perspective.